Events

May is PKU awareness Month!

May is PKU awareness Month!

Spread the word about the PKU! May is PKU Aweness Month!

May is PKU awareness Month!

Spread the word about the PKU! May is PKU Aweness Month!

PKU and the Zoo!

PKU and the Zoo!

PKU Educational Event COME JOIN THE PKU COMMUNITY FOR AN EDUCATIONAL EVENT AND A DAY OF EXPLORING Join the fun at the Zoo!Learn how to manage PKU for life, talk...

PKU and the Zoo!

PKU Educational Event COME JOIN THE PKU COMMUNITY FOR AN EDUCATIONAL EVENT AND A DAY OF EXPLORING Join the fun at the Zoo!Learn how to manage PKU for life, talk...

We are looking for board members who believe in...

As current board President, our small group of current board members needs your help in identifying and connecting to a wider pool of potential board and committee members. That’s why...

We are looking for board members who believe in...

As current board President, our small group of current board members needs your help in identifying and connecting to a wider pool of potential board and committee members. That’s why...

Go Low Pro!

Go Low Pro!

PKU News is thrilled to announce that we've received a grant from the Global Genes Rare Patient Impact Program (which also funded some HowMuchPhe.org features in 2016) for Go Low...

Go Low Pro!

PKU News is thrilled to announce that we've received a grant from the Global Genes Rare Patient Impact Program (which also funded some HowMuchPhe.org features in 2016) for Go Low...

Learn about PALNZIQ, March 6, 2019

Learn about PALNZIQ, March 6, 2019

Come learn about PALYNZIQTM (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear from a clinical expert about...

Learn about PALNZIQ, March 6, 2019

Come learn about PALYNZIQTM (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear from a clinical expert about...

Emergency Preparness Event

Emergency Preparness Event

You don't wat to miss this great event! Saturday January 19, 2019 at Odysea Aquarium. Sponsored by ANPAD and Horizon. Join us for Lunch, Keynote speaker, scavenger hunt and tickets...

Emergency Preparness Event

You don't wat to miss this great event! Saturday January 19, 2019 at Odysea Aquarium. Sponsored by ANPAD and Horizon. Join us for Lunch, Keynote speaker, scavenger hunt and tickets...