We are looking for board members who believe in our mission.
As current board President, our small group of current board members needs your help in identifying and connecting to a wider pool of potential board...
Events
Go Low Pro!
PKU News is thrilled to announce that we've received a grant from the Global Genes Rare Patient Impact Program (which also funded some HowMuchPhe.org features...
Rare Disease Day!
credit: https://www.rarediseaseday.org/article/what-is-rare-disease-day WHAT? Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the...
Learn about PALNZIQ, March 6, 2019
Come learn about PALYNZIQTM (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear...
Emergency Preparness Event
You don't wat to miss this great event! Saturday January 19, 2019 at Odysea Aquarium. Sponsored by ANPAD and Horizon. Join us for Lunch, Keynote...