Events

PKU News is thrilled to announce that we've received a grant from the Global Genes Rare Patient Impact Program (which also funded some HowMuchPhe.org features...

credit: https://www.rarediseaseday.org/article/what-is-rare-disease-day WHAT? Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the...

Come learn about PALYNZIQTM (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear...

You don't wat to miss this great event! Saturday January 19, 2019 at Odysea Aquarium. Sponsored by ANPAD and Horizon. Join us for Lunch, Keynote...

Tucson and Phoenix are celebrating the Holidays! Get together for the holidays ! Enjoy visiting and the fun activities. There is something for all ages!...