About Us


Arizona Network for PKU and Allied Disorders (ANPAD) was founded in 2011 by PKU parents, patients and medical professionals with the goal to fill the void of support groups offered to patients and families effected by PKU and allied genetic disorders. The founders Kristi Smith, an adult with PKU and her husband Matt Smith, Margaret Delaney, Ann Hall and Mark Stanley, all parents of PKU children and Sarah Cox MS, CGC have grown ANPAD into a licensed 501(c)(3) non-profit that hosts fundraising events, a summer camp and support groups for the patients and families of Arizona. We are your connection for PKU and Allied Disorders in Arizona, and we invite families, friends, co-workers, medical professionals and individuals with PKU or an allied disorder to join us in our mission.

 

The following businesses and organizations have consistently demonstrated their leadership in supporting our annual Camp Knot a Phe for kids and families with PKU and Allied Disorders through contributions, fundraising and volunteerism:

Community Partners:
Biomarin
Horizon
Vita Flow
Cambrooke
20/30 Club of Scottsdale
EC70

Camp Knot A Phe- Volunteers, Pow Wow Leaders, Chef Kevin, Chef Kent, Le Cordon Bleu, and PCH Metabolic Team.

Thank you Lisa Kohl and the MSUD group of amazing volunteers!
Volunteers from ANPAD included: the Spidell family, the Wilson family, Danielle Germany, the Jarrett family, Michele Bowen, the Hall family, the Stanley family, the Colville family and the Aleck family.