About Us

Arizona Network for PKU and Allied Disorders (ANPAD) was founded in 2011 by PKU parents, patients and medical professionals with the goal to fill the void of support groups offered to patients and families effected by PKU and allied genetic disorders. The founders Kristi Smith, an adult with PKU and her husband Matt Smith, Margaret Delaney, Ann Hall and Mark Stanley, all parents of PKU children and Sarah Cox MS, CGC have grown ANPAD into a licensed 501(c)(3) non-profit that hosts fundraising events, a summer camp and support groups for the patients and families of Arizona. We are your connection for PKU and Allied Disorders in Arizona, and we invite families, friends, co-workers, medical professionals and individuals with PKU or an allied disorder to join us in our mission.
Arizona Network for PKU & Allied Disorders Board Members

Ann Hall- Co-President
Jami Puerta- Co-President Phoenix
Jodi Spidell- Program Director
Danielle Germany, RN- Vice President Tucson
Melissa Mermis- Community/Volunteer Liaison
Scott Jarrett, CIA- Treasurer
Mary Salem PHARMD- Secretary
Dr. Kirk Aleck, MD- Genetic Representative
Peggy Kulch MS, CGC- Allied Disorders Representive
Brittany Fanelli and Mayra Epps- Community Outreach
The Arizona Network for PKU and Allied Disorders (ANPAD)
Tax ID# 27-4283489
14858 West Windsor
Goodyear, AZ 85395.
email: info@anpadnews


We thank the following businesses and organizations in supporting our annual Camp Knot a Phe for kids and families with PKU and Allied Disorders through contributions, fundraising and volunteerism:

ANPAD Board thanks, all the volunteers, individual donors,

Community Partners


Sponsors- Bankers' Trust, Passport Coffee and Tea, Nutricia, Vita Flo, Cambrooke, 20/30 Club of Scottsdale , EC70