Thanks to the wonderful support from our sponsors and donors, camp continues to be the best weekend of the summer. The weekend is filled with fun activities, crafts, sports, games, support groups, delicious low protein foods and new-found friends and families that have similar metabolic disorders.
Camp Knot a Phe started in 2011, and continues today as a family camp for Arizona individuals with metabolic disorders. Located on 80 acres just outside of Prescott, AZ in the beautiful, tall pines. Along with all the fun outdoor activities, camp provides educational tools for diet management, resources for parents, support group sessions, demonstrations, and information on the latest medical products. Camp staff is a joint effort between Phoenix Children's Hospital Metabolic Team and ANPAD board members.
All patients are invited with their family to camp each year. Individuals can learn at camp, while meeting others with similar metabolic conditions. There are many benefits individuals and their families have received from attending camp. Campers have been able to make friends and build a precious support network, families can depend on each other for help and education workshops assist individuals stay on or even return to diet. Many have overcome their fear of blood draws, by proper instruction and instructional home blood draw workshops. We circulate simplified medical food recipes, host workshops on diet tracking apps, sampling new foods and share our favorite foods to help patients when they return home.
These metabolic conditions must be monitored daily, and family support is necessary for these individuals to maintain their health. Camp helps teach, comfort and support our campers as they move through the next bright stages of their lives.
Camp lodging provides housing for the whole family. This year each family will have their own room. Many out the housing areas have several rooms together allowing for a wonderful retreat like experience.
Our dedicated Chef Kent ( Instructor at ASU ) careful provides delicious meals that are low in protein with the help PCH dieticians Melanie and Aylssa. Family members of patients will also get a opportunity to try these foods if they want. Regular camp meals are provided for those not on a low protein diet.
Just like you would hope for ... there are many camp activities. All campers will have an opportunity to enjoy fun activities like Archery, Arts & Crafts, Campfires, Rock Climbing, Camp Dance, Swings, Zip lining, Hiking, Paintball, horseback riding and more.
There will also be several optional discovery groups and workshops. Parents, kids and adults meet and get to share, ask questions, learn about future treatment and more.