Donation letter 2019


Ann Hall- President
Jami Puerta- Vice President Phoenix
Danielle Germany, RN- Vice President/Tucson
Mary Salem, PharmD- Secretary
Taylor Arnold PhD,RDN, Melissa Mermis Co-Volunteer Community Liaison
Scott Jarrett, CIA- Treasurer
Jodi Spidell- Program Director
Dr. Kirk Aleck, MD- Genetic Representative
Peggy Kulch, M.S.Genetic Counselor- Allied Disorders Representative
Brittany Fanelli, Mayra Epps -Co-Community Outreach

Dear Friends,

As many of you know, Arizona Network for PKU and Allied Disorders (ANPAD) has been helping Arizona’s children and families since 2011. With the support of Phoenix Children's Hospital Genetics and Metabolic team we have been able to improve the lives of the children and their families affected by rare childhood metabolic disorders. This coming October, we will be hosting our annual Night Under the Stars fundraising event.

We are asking for help in raising money by requesting donations, gift cards and items to auction at Night Under the Stars. This wonderful event will be filled with inspiration, music, and fabulous food while raising money to sponsor kids to attend programs like Camp Knot-a-Phe. This is a family camp where kids can meet others with rare childhood metabolic disorders. Through education and workshops they are given tools in which to live with their rare condition (medical food app, weighing out food, teaching at home blood-draws etc.), while having a great time doing normal summer camp activities. Donations will also help fund more education programs and medical supplies to Arizona ANPAD families in need.

Thank you for all the support, your help will be greatly appreciated! Night Under the Stars will be held in October 19, 2019. Find out more about anpadnews.org​.

Proceeds will help patients and their families who live with PKU, Homocystinuria, Urea Cycle Disorders, MSUD, Methylmalonic Acidemia, Glutaric Acidemia and other disorders of metabolism.

Tickets: BUY TICKETS

Interested in donating an item or sponsoring?

Find out how to donateDONATATION FORM

Find out how to sponsor: SPONSOR

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Find out more about anpadnews.org

Sincerely,

Ann Hall
ANPAD Board President

P.S.- Thank you for supporting ANPAD!

Tax ID# 27-4283489 14858 West Windsor Goodyear, AZ 85395. ANPAD is a 501(c)(3) organization www.anpadnews.org• email info@anadnews.org