Spread the word about the PKU! May is PKU Aweness Month! Arizona Network for PKU and Allied Disorders (ANPAD) mission is to help individuals with PKU and Allied Disorders to adhere to their treatment, inform families of the latest research and treatment advances, raise public awareness of PKU and Allied Disorders and create a support network for patients and families.
See quick facts about PKU and use it to help explain PKU to your friends and family, and to ask for their support.Here are some suggestions for ways that you can get the word out:
1. Share your story on social media ...and tag us. If you want to hear other share their story listen to Kevin Alexander’s pod cast PKU Life
2. Try a new food or make new PKU friendly recipe Many great recipes can be found on Cook for Love and Laura Hines Thriving with PKU. Look up new foods on How Much Phe.
3. Take a picture drinking formula...and tag us. You may help encourage someone to drink their formula. It sure can’t hurt and it might be fun!
4. Spread the word, Medical Nutrition Equity Hill Day, May 6-7, 2019. Patients & Providers for Medical Nutrition Equity Hill Day, May 6-7, 2019 in Washington, DC. We need as many advocates as possible to join us. If you are interested in joing our efforts please email Katrina Swenson at firstname.lastname@example.org. learn more about Medical Nutrition Act. The Medical Nutrition Equity Act, also known as MNEA, is legislation reintroduced in Congress in May 2019 by Representatives McGovern and Herrera Beutler with Reps. Brian Fitzpatrick and Joe Kennedy joining as original co-sponsors. The new bill number is H.R. 2501. MNEA would provide public and private insurance coverage for medically necessary foods (including vitamins) for digestive and inherited metabolic disorders.
5. Donate to ANPAD