🌟 Camp Knot a Phe 2025 Sponsors & Supporters
A huge thank you to all sponsors and partners—your support brings Camp Knot a Phe to life and makes this community possible.
Special thanks to private donors : The Lindsey Family Trust and The Leykam Family.
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BioMarin
A biopharmaceutical pioneer managing PKU for over 15 years with two FDA-approved therapies (including Palynziq and Kuvan) and active gene therapy research .
Website: biomarin.com -
PTC Therapeutics
Committed to rare disease treatments, PTC offers grants for PKU research and developed, a newly EC-authorized therapy
Website: ptcbio.com -
ANPAD (Arizona Network for PKU & Allied Disorders)
A volunteer-run network supporting families with PKU and allied disorders since 2011, organizing events like Camp Knot a Phe
Website: anpadnews.org -
Nexus
A full‑service patient hub under Regalo Health, offering pharmacy, reimbursement, and medication support to improve treatment access
Website: nexuspatientservices.com -
Nutricia
Specializes in medical nutrition for inherited metabolic disorders, offering formulas and dietary solutions across all ages
Website: nutriciametabolics.com -
Zoia Pharma
Exclusive U.S. distributor of low-protein foods (like Promin), with 100+ medical food options and insurance support
Website: zoiapharma.com -
Pentec Health
Provides medical and low-protein foods, enteral nutrition, and metabolic care, and recently acquired Zoia Pharma to expand access
Website: pentechealth.com -
Vitaflo (Nestlé Health Science)
Develops palatable, age-specific protein substitutes (e.g., PKU start™, PKU express™) for PKU management -
Cycle Pharma
Focuses on rare disease drug development, including for metabolic and neurological conditions
Website: cyclepharma.com (Cambridge/Boston-based) -
PKU Perspectives
Offering low-protein foods and medical nutrition for metabolic disorders PKU, MSDU and Homocystinuria. -
Ajinomoto Cambrooke
A leader in low-protein foods and medical nutrition, widely recognized in the metabolic disorder space. -
Passport Coffee & Tea
Provides high-quality, specialty coffee and tea—keeping volunteers energized throughout camp. passportcoffeeshop.com -
Promin (Firstplay Dietary Foods)
A trusted low-protein food brand (breads, cereals, pasta) distributed by Zoia and Pentec -
Mrs. Klein’s Pickles
A family-run gourmet pickle company—adding zesty flavor to camp snacks. -
eTon Pharmaceuticals
Develops and distributes specialized metabolic recipes and low-protein foods in partnership with ZOIA/Pentec.